An Insight into the Impact of Cauda Equina Syndrome on Body Image

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An insight into the impact of cauda equina syndrome on body image 

Suffering from a serious injury is extremely traumatic, and an event whereby practically every aspect of life can be permanently altered as a result. Psychologically, this can mean that those who sustain such injuries often find that their perceptions can also shift, putting the way they perceive themselves and certain situations in a new light. 

Individuals who suffer from spinal cord injuries, such as cauda equina syndrome, may be particularly likely to find that the physical effects of their injuries can have a wider impact on their mental health - in many cases, leading to issues with body image. 

With limited focus placed on a better understanding of cauda equina syndrome among GPs and other medical professionals in the UK, it is not surprising that even less is known about the emotional factors that come into play after an individual is eventually diagnosed with cauda equina syndrome. 

However, at JMW Solicitors, we pride ourselves on our knowledge and dedication to helping individuals with cauda equina syndrome, which is why we believe it is of utmost importance to shine a light on the impact that cauda equina syndrome can have on body image. We explore this concept in further detail below. 

Cauda equina syndrome explained 

Cauda equina syndrome is a debilitating spinal injury that can have a devastating impact on the lives of those people affected. Lesser known problems caused by cauda equina syndrome - and many other spinal injuries - can include urinary incontinence, lingering pain, impaired mobility and sexual dysfunction. 

When cauda equina syndrome strikes, patients require urgent surgery in order to stop the effects from becoming permanent. However, unfortunately, due to a lack of understanding of this condition, coupled with the fact that its symptoms are often confused with other injuries, there are often delays in diagnosis. 

Individuals who are affected by cauda equina syndrome can suddenly find their lives permanently transformed, with the condition affecting their personal and professional prospects in the long term. Unsurprisingly, these changes can have a profound and lasting impact on the mental health of patients. 

Peter, 44, whose name has been changed for confidentiality, is a former client of JMW. He explains the changes to his life brought on by cauda equina syndrome below:

“Cauda equina syndrome has changed my life dramatically on so many levels. The biggest adjustments were to my work and family life. I had to take early retirement as I was no longer able to work. I feel I cannot be without work so [I] have taken a part-time role at a supermarket, which I am even struggling with as well. 

“The family life impact has also been devastating, but I will elaborate on that below. Personally, I now have to manage a strict bowel and bladder regime and am no longer as mobile as I was before. I used to play rugby but am no longer able to do this. This has led to the loss of an active social life. There are also mental adjustments, which I would say are the biggest challenge.” 

Issues with self-esteem 

Body image is how a person sees, thinks and feels about the way they look. This concept also encompasses how a person believes they are seen by others. The sensitive nature of cauda equina syndrome symptoms, such as sexual and bladder dysfunction, means that those who are suffering are often less likely to talk about their problems. In addition to this, the physical changes caused by an inability to exercise in the same way, can have a considerable impact on patients’ self-esteem. 

Sexual therapist Michelle Donald, who works with clients with spinal injuries, acknowledges that a loss of interest in sex and physical contact following a cauda equina syndrome diagnosis can be down to issues with body image. 

She said: “Often clients come to me a long time after the initial diagnosis, by which time unhelpful patterns have been established and have already affected their behaviour.

“Many prescribed medications cause fatigue and reduce desire. This affects how people feel about initiating sex. Problems with weight gain often cause clients to have issues with their body image, especially if their pattern of walking has altered or they are using a wheelchair.”

We asked individuals who had been diagnosed with cauda equina syndrome to describe its impact on their body image:

Searching for support 

One of the most important steps an individual can take after being diagnosed with a spinal injury such as cauda equina syndrome is to seek out support groups, which can prove invaluable in getting their life back on track. JMW Solicitors has a longstanding relationship with the Cauda Equina Champions Charity, which is working to raise awareness of the condition to ensure that people who receive a diagnosis can engage with a community of individuals who have experienced similar issues. 

While recovery from cauda equina syndrome is rarely a linear process, joining national or local support groups can help to ensure that those living with the condition receive much-needed guidance. Taking steps to increase confidence by feeling part of a community can prove invaluable when it comes to boosting body image and self-esteem. 

For more information on how JMW Solicitors can help those who have been diagnosed with cauda equina syndrome, visit our dedicated service page here.

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